Alrighty, here it is…
Lydia can now sit up all by herself, very well. She figured this out at the end January, after being without any therapy for over a month due to Christmas and getting sick. We sent the torture chamber also known as a stander back with her physical therapist. Now Lydia just practices standing in her walker, also given to us by her PT. Just FYI- I don’t recommend walkers. I don’t think they are very helpful. However, in Lydia’s case she uses it more like an exersaucer (Don’t ask me why she doesn’t like her saucer she already has) and practices standing in a non intimidating environment. Last night I made Lydia stand on my lap. She wasn’t completely sure about it but she did it- putting weight on her legs for over 15 minutes. Playing with a sharpie helped distract her from the sheer annoyance of actually using her legs. And no, she is not covered in ink like the rest of my kids- I left the lid on. Also last night Lydia put a toy in her mouth and chewed on it. I was very excited about that! Lydia was laughing at me and my reaction. She would then chew on it and wait for me to react. It made me ridiculously happy. She is eating and drinking a bit better. Food still has to be not too thick and not too thin. Soup is out as she can’t figure out how to keep that in her mouth. Steel cut oats mixed with yogurt and soft fruit is her favorite and mine too as it is very easy to prepare. She will drink a few Tablespoons of yogurt thinned with just a touch of milk. This is best done before bath time as she still makes a mess with it.
Now for the long story. When Lydia was a week old she had an MRI. It proved to be incomplete so they did another one the next day utilizing Diffusion weighted imaging. Every time we would ask for the results of that second MRI I was told it wasn’t ready yet, they didn’t know, they’d call the radiologist again. This went on for almost 2 months. Finally at the neurologists office I asked him. He assured me there was only 1 MRI and that was normal. I insisted there wee 2 and to shut me up he brought me into his office, pulled up her tests and low and behold bother her MRIs were combined into 1 (as obvious by the dates on the images). He looked a them and said “this par should be white and it is black, that’s a brain insult. Expect delays”. That was it. I assumed he was right. Fast forward to February 2008 (almost 17 months from the MRI) when I requested all of Lydia’s medical records from the hospital. The MRI report said “unremarkable other then brain size slightly smaller then gestational age”. Nothing about a brain insult. I assumed her file was wrong and called all over trying to find out what happened to the new report. I contacted radiology, who had the neuro-radiologist review Lydia’s MRI and report. After a call back (while I was grocery shopping) lady from radiology assured me that yes, this report was correct. So all this time I have been thinking she had a brain insult when the report actually said nothing of the sort. Now she does have abnormal eegs which I would think could explain the developmental delay. Anyway, that is how long it takes to get MRI results- 16 1/2 months.
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